Caring for a loved one is often associated with a roller coaster of emotions, which can be both physically and mentally exhausting.¹ It is important to recognise these feelings - both positive and negative. Be reassured that it is normal to feel a range of emotions during this time.

“ “Never cope alone as a carer, there is always someone there to listen and understand how you feel” ”

While caring for someone with pulmonary fibrosis, you may face many challenges and have to consider things you haven’t thought about, such as:

What support is available for you as you provide care from home
Understanding the differences between supportive care and end-of-life care
Legal and financial matters you have never had to deal with before
What support is available to help you cope with the emotional challenges of being a caregiver

QUICK TIP

When caring for somebody with pulmonary fibrosis, looking after your own wellbeing is essential for looking after your loved one effectively

Olivia’s story

Having a loved one with pulmonary fibrosis has shown Olivia what kind of doctor she wants to be.

Video length: 1.17 mins

“ “It's mostly about compassion.” ”

Olivia

Key takeaways

Caring for someone with pulmonary fibrosis can be both challenging and highly rewarding

You may face some challenges you might not have previously thought about when being a carer

Supportive care, end-of-life care and power of attorney are some other things to consider when caring for someone with pulmonary fibrosis

1. Belkin A, Albright K, Swigris JJ, et al. A qualitative study of informal caregivers’ perspectives on the effects of idiopathic pulmonary fibrosis. BMJ Open Respir Res. 2014;1(1):e000007.